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FACE for Children With Rare Diseases
| Children's National Research Institute
European Registry on Rare Neurological Diseases
| University Hospital Tuebingen
COVID-19 and Rare Skin Diseases European Observational Study During an Epidemic
| Imagine Institute
Functional Genomics of Rare Genetic Diseases: Realization of Innovative Tools W...
| Neuromed IRCCS
NICUSeq: A Trial to Evaluate the Clinical Utility of Human Whole Genome Sequenc...
| Illumina, Inc.
Homozygous Familial Hypercholesterolemia (HoFH)
Identifying and Genotyping Homozygous Familial Hypercholesterolemia (HoFH) Pati...
| Regenxbio Inc.
A Gene Therapy Study for Homozygous Familial Hypercholesterolemia (HoFH)
| Regenxbio Inc.
Paroxysmal Nocturnal Hemoglobinuria
A Safety and Immunogenicity Study in Long-term Treatment of Eculizumab (JSC "GE...
| AO GENERIUM
Apr 10, 2021
Hi, I wanted to know where can I find the results of the study on PNH that has recently been completed and how do I enroll in the study NCT03818607 | Active, not recruiting | Paroxysmal Nocturnal Hemoglobinuria
Ja ER you can contact the study sponsor and provide them the reference ID of the study NCT04679103 - as mentioned in the summary of the studies with results this study was sponsored by Generium - I googled their contact address which is https://www.generium.ru/en/contacts/ - Hope this helps - as for your second query just follow the study listing and click on the study site on right hand of your screen which will take you to one of the study sites where you can find out information about enrolling in the study - good luck
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