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NCT06635876 | NOT YET RECRUITING | Dementia

Caregivers Preparing for Their Own Health Care Emergency
Sponsor:

University of California, Davis

Brief Summary:

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Condition or disease

Dementia

Caregiver Burden

Intervention/treatment

Coaching Sessions

Phase

NA

Study Type : INTERVENTIONAL
Estimated Enrollment : 68 participants
Masking : DOUBLE
Primary Purpose : PREVENTION
Official Title : Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency
Actual Study Start Date : 2025-03-01
Estimated Primary Completion Date : 2026-03
Estimated Study Completion Date : 2026-06

Information not available for Arms and Intervention/treatment

Ages Eligible for Study: 18 Years
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers:
Criteria
Inclusion Criteria
  • * Must be 18 years of age or older at the time of signing the informed consent
  • * Must self-identify as the spouse or partner of the PWD
  • * Must provide some caregiving to a PWD
  • * Must live in the same dwelling as the PWD
Exclusion Criteria
  • * Diagnosis of dementia
  • * Unable to use or does not have access to a computer
  • * Complete deafness or blindness and/or unable to use a telephone
  • * Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
  • * Unable to follow directions
  • * Unable to read or write in English
  • * Participation in prior study involving the EPT
Caregivers Preparing for Their Own Health Care Emergency

Location Details

NCT06635876

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