University of Oregon
The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).
Dementia
Dysphagia
Dementia Alzheimers
Dementia, Vascular
Dementia, Mixed
Dementia With Lewy Bodies
Dementia Frontal
Dementia, Mild
Dementia Moderate
Dementia Severe
Parkinson Disease Dementia
Dementia Frontotemporal
This research aims to increase our understanding of dysphagia-related caregiver burden and inform the development of a comprehensive dysphagia intervention, one that promotes the health and quality of life of both the caregiver and the person with dementia. Aim 1. Quantify dysphagia's contribution to burden among family caregivers of persons with dementia across the disease trajectory to identify when may be best to intervene. Aim 2. Characterize the moderating effects of caregiver readiness and support on dysphagia-related burden and care recipient quality of life to identify what are the most appropriate intervention targets.
| Study Type : | OBSERVATIONAL |
| Estimated Enrollment : | 250 participants |
| Official Title : | Influence of Swallowing Impairment on Burden Among Caregivers of Persons With Alzheimer's Disease and Related Dementias |
| Actual Study Start Date : | 2023-11-07 |
| Estimated Primary Completion Date : | 2025-06-30 |
| Estimated Study Completion Date : | 2025-12-31 |
Information not available for Arms and Intervention/treatment
| Ages Eligible for Study: | 18 Years |
| Sexes Eligible for Study: | ALL |
| Accepts Healthy Volunteers: | 1 |
Want to participate in this study, select a site at your convenience, send yourself email to get contact details and prescreening steps.
RECRUITING
Remote study offered by the University of Oregon
Eugene, Oregon, United States, 97403