Public Assistance - Paris Hospitals
The main objective of the study is to assess the oral health-related quality of life of patients with rare diseases and followed in the rare disease centers of expertise at Necker Hospital in Paris by semi-structured interviews.
Rare Diseases
Semi-structured interview
To date, few studies have used the qualitative method to analyze the oral health-related quality of life and the oral health care pathways of patients with rare diseases, all health sectors combined. The quantitative studies carried out using standardized questionnaires offer only a partial view of how patients feel, both children and adults. The main objective of the study is to assess the oral health-related quality of life of patients with rare diseases and followed in the rare disease centers of expertise at Necker Hospital in Paris by means of a semi-structured interview.
| Study Type : | OBSERVATIONAL |
| Estimated Enrollment : | 28 participants |
| Official Title : | Oral Health Related Quality of Life of Patients With Rare Diseases Followed at Necker Hospital: a Qualitative Approach |
| Actual Study Start Date : | 2021-10-20 |
| Estimated Primary Completion Date : | 2021-11-29 |
| Estimated Study Completion Date : | 2021-11-29 |
Information not available for Arms and Intervention/treatment
| Ages Eligible for Study: | 6 Years |
| Sexes Eligible for Study: | ALL |
| Accepts Healthy Volunteers: |
Want to participate in this study, select a site at your convenience, send yourself email to get contact details and prescreening steps.
Not yet recruiting
Necker-Sick Children Hospital
Paris, France, 75015