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NCT04690374 | RECRUITING | Desmoplastic Small Round Cell Tumor

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
Sponsor:

Memorial Sloan Kettering Cancer Center

Brief Summary:

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Condition or disease

Desmoplastic Small Round Cell Tumor

Study Type : OBSERVATIONAL
Estimated Enrollment : 250 participants
Official Title : Registry for Patients With Desmoplastic Small Round Cell Tumor
Actual Study Start Date : 2020-12-22
Estimated Primary Completion Date : 2027-12
Estimated Study Completion Date : 2027-12

Information not available for Arms and Intervention/treatment

Ages Eligible for Study:
Sexes Eligible for Study: ALL
Accepts Healthy Volunteers:
Criteria
Inclusion Criteria
  • * Participants must have a diagnosis of desmoplastic small round cell tumor
  • * Participants may be of any age as long as the appropriate consent and assent may be obtained
  • * Willing to provide historical and longitudinal clinical data
Exclusion Criteria
  • * Participant unwilling to provide consent or share historical and longitudinal clinical data
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Location Details

NCT04690374

Please Choose a site

How to Participate

Want to participate in this study, select a site at your convenience, send yourself email to get contact details and prescreening steps.

Locations

RECRUITING

United States, New York

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

New York, New York, United States, 10065