University Hospital, Geneva
Casini Alessandro
The aim of this observational study is to evaluate the quality of life in patients with congenital afibrinogenemia using the Haemo-QoL SF for kids and the Haem-A-QoL for adult patients.
Afibrinogenemia, Congenital
Questionnaire quality of life
In this observational study, children and adults suffering from congenital afibrinogenemia confirmed by biology will be enrolled. All patients will receive a questionnaire on quality of life in their own language during a routine visit and filled out by the patient at home. A general questionnaire will be filled out by the patient's physician.
| Study Type : | OBSERVATIONAL |
| Estimated Enrollment : | 250 participants |
| Official Title : | Quality of Life in Patients With Congenital Afibrinogenemia |
| Actual Study Start Date : | 2016-06 |
| Estimated Primary Completion Date : | 2019-07 |
| Estimated Study Completion Date : | 2020-06 |
Information not available for Arms and Intervention/treatment
| Ages Eligible for Study: | 8 Years |
| Sexes Eligible for Study: | ALL |
| Accepts Healthy Volunteers: |
Want to participate in this study, select a site at your convenience, send yourself email to get contact details and prescreening steps.
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