University of Texas Southwestern Medical Center
Benjamin Greenberg
This study seeks to determine the biologic causes of inflammation in patients with Transverse Myelitis (TM) Neuromyelitis Optica Spectrum Disorder (NMOSD) and related conditions. While patients will be treated according to decisions with their treating physician, this study will collect data and samples from patients prospectively to gain a better understanding of the disease. We are seeking to understand why some patients respond to medications, while others do not. We also seek to understand what happens biologically, preceding relapses. Gathering these data and samples will allow researchers to identify new ways of diagnosing and treating these diseases. Data and samples will be shared with researchers around the world to support collaborative efforts to treat these conditions.
Neuromyelitis Optica
Neuromyelitis Optica Spectrum Disorder
Transverse Myelitis
Optic Neuritis
This study seeks to determine the biologic causes of inflammation in patients with Neuromyelitis Optica (NMO), Transverse Myelitis (TM), optic neuritis (ON), related conditions and healthy controls. While patients will be treated according to decisions with their treating physician, this study will collect data and samples from patients prospectively to gain a better understanding of the disease. We are seeking to understand why some patients respond to medications, while others do not. We also seek to understand what happens biologically, preceding relapses. Gathering these data and samples will allow researchers to identify new ways of diagnosing and treating these diseases. Data and samples will be shared with researchers around the world to support collaborative efforts to treat these conditions. Patients will agree to share medical records, complete questionnaires and donate samples on a timed basis.
| Study Type : | OBSERVATIONAL |
| Estimated Enrollment : | 150 participants |
| Official Title : | Collaboration on Neuroimmunology: Question, Understand, Educate, Restore - the Longitudinal CONQUER Study of Rare Neuroimmunologic Disorders |
| Actual Study Start Date : | 2012-06 |
| Estimated Primary Completion Date : | 2025-06 |
| Estimated Study Completion Date : | 2025-06 |
Information not available for Arms and Intervention/treatment
| Ages Eligible for Study: | 6 Years |
| Sexes Eligible for Study: | ALL |
| Accepts Healthy Volunteers: | 1 |
Want to participate in this study, select a site at your convenience, send yourself email to get contact details and prescreening steps.
RECRUITING
The University of Texas Southwestern Medical Center
Dallas, Texas, United States, 75390